Steve Waugh Foundation - Children and Young Adults with a Rare Disease - 2024 - Round 3

The Steve Waugh Foundation supports children and young adults aged 0-25 years who have a rare disease with a prevalence of at least 2:100,000.

The Foundation will consider funding -

• Equipment
• Mobility Aids
• Communication Devices
• Therapy
• Treatment
• Some minor house renovations
• Items that improve the quality of life for the applicant and their family

To be eligible to apply:   

• You must be an Australian Citizen or an Australian permanent resident of at least five years to gain assistance from the Foundation and;
• Have a recognised rare disease as identified on ORPHANET: www.orpha.net, or if not recognised your medical specialist must confirm the disease is rare
• Have an Australian Medicare card
• Have already made an application for government funding assistance for the requested item, eg the NDIS
• The rare disease has been formally and officially diagnosed by a Paediatrician or other Medical Specialist
• You have and can provide evidence of the diagnosis of the rare disease signed off by a Paediatrician or other medical specialist
• You have and can provide medical, health and other documentation or support material required as part of your application

Note: Applications submitted outside these dates can be carried forward for review in the following Grant Round but are unable to be assessed outside these dates. The Online Application and all required supporting documentation must be submitted on time to complete the Grant Application.